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tohma2004Thank you to everyone for your support with my last entry. I'm not any less angry then I was about the situation but thats going to take quite a bit to get over, especially when I probably haven't heard the last of it.
I basically told my parents today that I am going to conventions whether they want me to go or not. Or rather I told my mom. I don't think my father has a problem with it. His main concern is actually the transportation to and from the convention...and even I have this same concern. Six hours is a long drive and chances are I would be making it alone and since I have to no idea how my body will react day to day..just makes me a little nervous is all. but yeah..if I can get there I will be there. thats AWA, AUSA, Nekocon that I'm thinking of. One a month for the next three months. biggest hurdle will be AUSA since it will fall on a chemo week, which means I'll be getting my oh so awful Neulasta shot that makes me feel not so good.
Anyway..it was an intersting chemo day.
Today was the day of OMG WAITING. When i got to the office I was taken right in and weighted (130 pounds OMG!! I almost feel normal). Then Went through the normal routine of getting my temperature and blood preasure checked and of course, the port being pricked and my blood being taken. Then the nurse went off to run the blood tests and so I sat there waiting for the doctor to arrive. And waited..and waited..and watched him travel from exam room to exam room..and watched as patient after patient was taken to their chemo room. And about 45 minutes later he came in finally. Only really talk with him for a few minutes. He asks how I am feeling, whether I had any side effects, what my next month will look like as far as appointments (another lung test and my next MRI).
Then I go off to do my chemo. All the chemo rooms are full except for one which actually is a room instead of a cubby with a curtain. I felt special. I settled in to do a little sewing on a "secret" project and looked around for the tv remote. Not finding one I go about my sewing in the near silence of this room. The nurse checks on me once and brings me a pepsi, telling me my chemo should be ready soon. The second time she checks on me I ask if there is a remote somewhere. not finding one in the room she goes and gets one from somewhere and I finally have some entertainment. Then I wait and wait and wait for the nurse to come back with my chemo. About 45 minutes later she finally comes in with my saline solution and my anti-nausea medicine. By then I am almost done with my sewing project and by the time those two bags of liquid were in my body, I was done. For some reason a few minute after I set aside my project my body started to feel like it was burning up and I grew very uncomfortable. A few minutes after the solutions were done though this went away. It was very strange.
Then the long process of getting the actual chemo drugs started. All four bags were hung on the IV unit and I settled back to watch a few hours of tv. Just as the red chemo drug started to enter my body I felt a strange tingling in my left hand. It was almost as if my hand had fallen asleep but a little more unpleasant. It was very odd but it soon went away. Just as I was having my issue I heard the nurse calling for another nurse across the hallway. I looked over and she was pushing the blood preasure machine into the curtained cubby of an old man who was also undergoing some treatment. The other nurse and the doctor arrived and went about asking him questions and talking to him. They covered his entire body with blankets, including his head. Appaprently he was getting shivers and chilled from one of the drugs he was receiving. As they were working on him one of the nurses came over and asked if she could close my door alittle. I said yes and she shut it about halfway and the guy's curtain was also closed. I could still hear them takling to him and it sounded like it was one of his first treatments. Don't really know what happened but after a good while things seemed to calm down.
My treatment took about 2 hours and then I went off. During my many hours of watching and waiting I noticed something (not for the first time really). I am usually the youngest person getting treatment, or even in the office by many years. Most of the cancer patients appear to be 60s or older which kind of surprises me. I suppose I should have figured a lot of cancers don't really form until you are much older, but it is always a little strange being 26 and being in the cancer office around all these people that could be my grandparents. And having both my grandmothers succumb to cancer themselves, it is a really odd fealing for me.
Rained again today but it is supposed to clear up tomorrow. I get my Neulasta shot around noon.
I basically told my parents today that I am going to conventions whether they want me to go or not. Or rather I told my mom. I don't think my father has a problem with it. His main concern is actually the transportation to and from the convention...and even I have this same concern. Six hours is a long drive and chances are I would be making it alone and since I have to no idea how my body will react day to day..just makes me a little nervous is all. but yeah..if I can get there I will be there. thats AWA, AUSA, Nekocon that I'm thinking of. One a month for the next three months. biggest hurdle will be AUSA since it will fall on a chemo week, which means I'll be getting my oh so awful Neulasta shot that makes me feel not so good.
Anyway..it was an intersting chemo day.
Today was the day of OMG WAITING. When i got to the office I was taken right in and weighted (130 pounds OMG!! I almost feel normal). Then Went through the normal routine of getting my temperature and blood preasure checked and of course, the port being pricked and my blood being taken. Then the nurse went off to run the blood tests and so I sat there waiting for the doctor to arrive. And waited..and waited..and watched him travel from exam room to exam room..and watched as patient after patient was taken to their chemo room. And about 45 minutes later he came in finally. Only really talk with him for a few minutes. He asks how I am feeling, whether I had any side effects, what my next month will look like as far as appointments (another lung test and my next MRI).
Then I go off to do my chemo. All the chemo rooms are full except for one which actually is a room instead of a cubby with a curtain. I felt special. I settled in to do a little sewing on a "secret" project and looked around for the tv remote. Not finding one I go about my sewing in the near silence of this room. The nurse checks on me once and brings me a pepsi, telling me my chemo should be ready soon. The second time she checks on me I ask if there is a remote somewhere. not finding one in the room she goes and gets one from somewhere and I finally have some entertainment. Then I wait and wait and wait for the nurse to come back with my chemo. About 45 minutes later she finally comes in with my saline solution and my anti-nausea medicine. By then I am almost done with my sewing project and by the time those two bags of liquid were in my body, I was done. For some reason a few minute after I set aside my project my body started to feel like it was burning up and I grew very uncomfortable. A few minutes after the solutions were done though this went away. It was very strange.
Then the long process of getting the actual chemo drugs started. All four bags were hung on the IV unit and I settled back to watch a few hours of tv. Just as the red chemo drug started to enter my body I felt a strange tingling in my left hand. It was almost as if my hand had fallen asleep but a little more unpleasant. It was very odd but it soon went away. Just as I was having my issue I heard the nurse calling for another nurse across the hallway. I looked over and she was pushing the blood preasure machine into the curtained cubby of an old man who was also undergoing some treatment. The other nurse and the doctor arrived and went about asking him questions and talking to him. They covered his entire body with blankets, including his head. Appaprently he was getting shivers and chilled from one of the drugs he was receiving. As they were working on him one of the nurses came over and asked if she could close my door alittle. I said yes and she shut it about halfway and the guy's curtain was also closed. I could still hear them takling to him and it sounded like it was one of his first treatments. Don't really know what happened but after a good while things seemed to calm down.
My treatment took about 2 hours and then I went off. During my many hours of watching and waiting I noticed something (not for the first time really). I am usually the youngest person getting treatment, or even in the office by many years. Most of the cancer patients appear to be 60s or older which kind of surprises me. I suppose I should have figured a lot of cancers don't really form until you are much older, but it is always a little strange being 26 and being in the cancer office around all these people that could be my grandparents. And having both my grandmothers succumb to cancer themselves, it is a really odd fealing for me.
Rained again today but it is supposed to clear up tomorrow. I get my Neulasta shot around noon.
